Resources and organisations for Hodgkin lymphoma

Organisations, support groups, books, videos and other resources to help you cope with Hodgkin lymphoma.

Cancer Research UK information and support

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.

We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.

Cancer Chat is our online forum where you can share experiences.

Lymphoma support organisations

Blood Cancer UK funds research into leukaemia, lymphoma and myeloma. It also provides patient information booklets and leaflets that you can download or order from their website. 

Support line: 0808 2080 888 

Email address: support@bloodcancer.org.uk

Lymphoma Action provides information and support for people affected by lymphoma. They provide a helpline service. They also offer online support meetings and a buddy service for putting patients in touch with each other. They run educational events and webinars.

They have a website which includes a database of lymphoma clinical trials.

Telephone for support or information: 0808 808 5555 (10 am to 3 pm Monday to Friday)
Telephone for general enquires: 01296 619 400
Email: information@lymphoma-action.org.uk 

The Lymphoma Information Network is an American site, written by someone who has been through successful but intensive treatment for Hodgkin lymphoma. There is information about Hodgkin and non-Hodgkin lymphoma that is detailed and quite technical in places. This site is very thorough, with links and booklists.

The National Cancer Institute (NCI) is an American organisation that supports cancer research. They have information about all types of cancer, including Hodgkin lymphoma.

General support organisations

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.

Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form

Teenage Cancer Trust is a national charity providing specialist units, expert staff, support events, education and information for 13 to 24 year olds diagnosed with cancer, and their friends and families.

Teenage Cancer Trust also work closely with healthcare professionals and researchers to lead the way on developing cancer care for teenagers and young adults.

Teenage Cancer Trust
The Place
175 High Holborn
London
WC1V 7AA

Phone: 020 7612 0370 Monday to Friday 9am to 5pm
Email: hello@teenagecancertrust.org

Young Lives vs Cancer is a charity that provides clinical, practical, financial and emotional support for children and young people and their families who are affected by cancer. You can chat to the social care team through their live chat. Or you can email or phone them.

Phone: 0300 303 5220 Monday to Friday 10am to 4pm. 

Email: getsupport@younglivesvscancer.org.uk

Books about Hodgkin lymphoma

Dr Mark Gugliotti
iUniverse, 2009
ISBN-13: 978-1440134524

An American physiotherapist describes his personal experience of Hodgkin lymphoma.

Books about cancer and treatment

J Mackay and N Hirano
New Harbinger Press, 2002
ISBN 1572240709

Written by American oncology nurses, this book has practical tips for coping with treatment side effects.

N Keene, W Hobbie and K Ruccione
Childhood cancer guides, 2012
ISBN 978-1-941089-10-1

This is a US book, so some of the information may not apply (future medical insurance for example). But it is the only book of its kind and has helpful information on coping with emotional and practical aspects of life after cancer.

Booklets and factsheets

These booklets can be ordered or downloaded from the Lymphoma Action website. 

Young person's guide to lymphoma
Hodgkin lymphoma
Autologous stem cell transplant
Living with and beyond lymphoma
When someone close to you has lymphoma
Tom has lymphoma. A storybook about lymphoma for primary school aged children

These booklets can be ordered from Macmillan Cancer Support's website. You can also listen to audiobooks and podcasts.

A parent's guide to children's cancers
Diet and cancer 
Lost for words – how to talk to someone with cancer
Relationships, sex and fertility for young people affected by cancer 
Talking about your cancer 
Talking to children when an adult has cancer
Sexuality and cancer 
Understanding cancer research trials (clinical trials)
Understanding chemotherapy 
Understanding Hodgkin lymphoma
Understanding radiotherapy
Understanding high dose treatment with stem cell support

These booklets can be ordered, or downloaded from the Blood Cancer UK website.

Undergoing high dose therapy and autologous stem cell transplant
Bone marrow and stem cell transplantation (BMT) – for children and adults
Hodgkin lymphoma
Donating stem cells – what's involved?

Videos of people's stories

Provides free, reliable information about health issues including mental health, by sharing people's real-life experiences.

Find local cancer information and support near you

There are organisations and support in your local area that you can access. You can ask your specialist nurse or doctor for more information about cancer services near you.

England

The NHS website has a service that tells you about local information and support in England.

Scotland

NHS Inform gives information about illness, treatments and NHS services for people in Scotland.

Wales

NHS 111 Wales gives health advice and information for people living in Wales.

Northern Ireland

The Northern Ireland Cancer Network (NICaN) website tells you where to find cancer information and support in Northern Ireland.

Last reviewed: 
12 Apr 2024
Next review due: 
12 Apr 2027

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